TRS National Resource Centre for Rare Disorders

TRS is a part of the Norwegian National Resource Services on Rare Disorders (NKSD) and is located at Sunnaas Hospital in Nesodden, near Oslo, Norway. You can read about some of the disorders TRS offer services to here.
Description of disorders in English

Medical professionals and other professionals (such as teachers) may contact TRS for advice. As a patient or next of kin you may contact TRS for information about where you can get further assistance. TRS does not perform diagnostics or individual treatment.

TRS' activities fall into three main categories:

Knowledge dissemination and counselling
Cooperation and involvement
Research

The three categories are described in detail below, and also in a short film about TRS:

In this film we tell you what TRS Resource Center for Rare Disorders is and what we do.

The center builds and disseminates knowledge about rare disorders and related issues. We do this by being up to date on new research, participating in research (national as well as international), networks and conferences, registers, meetings and on educational arenas. We host courses and webinars, develop films and podcasts and our website provides extensive information about rare disorders.
Knowledge is not useful before it is available to the end user. No matter if that is parents whose child has recently been diagnosed, a primary care physician, a teacher, a school nurse, a hospital specialist or an employee at the local welfare administration.

We cooperate closely with professionals and persons with rare disorders, in clinical settings, though courses, in projects and by cooperating with interest groups.

Telefone: 66 96 90 00 , telephone hours: monday-friday 10-12 and 13-14.

e-mail: trs@sunnaas.no (do not send health information by e-mail).

Post: TRS kompetansesenter, Sunnaas sykehus, Bjørnemyrveien 11, 1453 Bjørnemyr.

A good dialogue between users of TRS and the people who work here is important to provide a beneficial set of services. The center cooperates with relevant interest groups and meets with regular intervals.

TRS also work closely with professionals, both on behalf of the individual user but also to secure good services in the welfare system.

User organisations for TRS diagnoses

Here you will find links to websites for user organisations for the TRS diagnoses:

There is a continuous need to develop knowledge about rare disorders. TRS is focused on bringing users and researchers together to further new competence. Our research is influenced by questions from service users and their peers, clinicians, other relevant services (e.g. the school/educational systems, the Norwegian labor and welfare administration (NAV), etc), and systematically includes non-governmental organizations (NGOs).

TRS National Resource Centre for Rare Disorders

TRS' activities fall into three main categories:

1. Knowledge dissemination

How can you conta​​ct TRS?

2. Coo​​peration and involvement

​3. Re​s​earch