A systematic review about the current evidence about effective rehabilitation for children with rare bone diseases
Project leader
Ariane Kwiet, dr.med
Abstract
Rationale for the review
Children with rare bone disease need rehabilitation in different situation throughout childhood, after surgery or trauma, when experiencing loss of function, or when facing changes in daily functioning, pain, fatigue, or difficulties participating in school and leisure activities. Pharmacological and surgical treatments have been the main focus of research, but in the last years, more and more focus is been given to rehabilitation services, including physical therapy, occupational therapy, exercise programs, orthotic devices, and psychosocial support. However, current evidence regarding the effectiveness and safety of rehabilitation interventions for rare bone diseases is scattered and inconsistent. A systematic review is therefore needed to synthesize the available data and guide clinical practice.
Review objectives
Primary: To identify and synthesize evidence on rehabilitation interventions for children with rare bone diseases.
Secondary: To explore outcomes related to function, participation, quality of life, and adverse events.
Research group menbers
Projectleader
Ariane Kwiet
Senior Consultant / dr.med, Norwegian Centre for Rare Diseases, unit Sunnaas.
Project employees
Trine Bathen, Occupational Therapy Specialist / MSc, Norwegian Centre for Rare Diseases, unit Sunnaas.
Kristin Schewe Loxley, Occupational Therapy Specialist / MSc, Norwegian Centre for Rare Diseases, unit Sunnaas.
Hilde Strømme, Academic Librarian, Library of Medicine and Science at University of Oslo.
Study Protocol
Study protocol is registered in PROSPERO