Referanser til TRS` informasjon om dysmeli

​Under er referanser brukt i områdene medisinske forhold; psykologiske forhold; fysisk funksjon, aktivitet og trening; dagligliv- barnehage, skole, utdagging, arbeid og fritid.

  1. Folkehelseinstituttet. Medisinsk fødselsregister og abortregisteret - statistikkbanker. 2016. http://statistikk.fhi.no/mfr/
  2. Ephraim PL, Dillingham TR, Sector M, Pezzin LE, MacKenzie EJ. Epidemiology of limb loss and congenital limb deficiency: a review of the literature. Archives of physical medicine and rehabilitation. 2003;84(5):747-61.
  3. Wilcox WR, Coulter CP, Schmitz ML. Congenital limb deficiency disorders. Clinics in perinatology. 2015;42(2):281-300, viii.
  4. Gold NB, Westgate MN, Holmes LB. Anatomic and etiological classification of congenital limb deficiencies. American journal of medical genetics Part A. 2011;155a(6):1225-35.
  5. Bedard T, Lowry RB, Sibbald B, Kiefer GN, Metcalfe A. Congenital limb deficiencies in Alberta-a review of 33 years (1980-2012) from the Alberta Congenital Anomalies Surveillance System (ACASS). American journal of medical genetics Part A. 2015;167a(11):2599-609.
  6. Day HJ. The ISO/ISPO classification of congenital limb deficiency. Prosthet Orthot Int. 1991;15(2):67-9.
  7. McGuirk CK, Westgate MN, Holmes LB. Limb deficiencies in newborn infants. Pediatrics. 2001;108(4):E64.
  8. Aberg A, Westbom L, Kallen B. Congenital malformations among infants whose mothers had gestational diabetes or preexisting diabetes. Early human development. 2001;61(2):85-95.
  9. Kallen B, Rahmani TM, Winberg J. Infants with congenital limb reduction registered in the Swedish Register of Congenital Malformations. Teratology. 1984;29(1):73-85.
  10. Luteijn JM, Brown MJ, Dolk H. Influenza and congenital anomalies: a systematic review and meta-analysis. Human reproduction (Oxford, England). 2014;29(4):809-23.
  11. Hochberg L, Stone J. Folic acid supplementation in pregnancy. UpToDate; 2016. https://www.uptodate.com/contents/folic-acid-supplementation-in-pregnancy?source=search_result&search=folic%20acid&selectedTitle=6~150:
  12. Hackshaw A, Rodeck C, Boniface S. Maternal smoking in pregnancy and birth defects: a systematic review based on 173 687 malformed cases and 11.7 million controls. Human reproduction update. 2011;17(5):589-604.
  13. Nicoletti D, Appel LD, Siedersberger Neto P, Guimaraes GW, Zhang L. Maternal smoking during pregnancy and birth defects in children: a systematic review with meta-analysis. Cadernos de saude publica. 2014;30(12):2491-529.
  14. Michielsen A, Van Wijk I, Ketelaar M. Participation and quality of life in children and adolescents with congenital limb deficiencies: A narrative review. Prosthet Orthot Int. 2010;34(4):351-61.
  15. Sjöberg L, Nilsagård Y, Fredriksson C. Life situation of adults with congenital limb reduction deficiency in Sweden. Disability and rehabilitation. 2014;36(18):1562-71.
  16. Ylimäinen K, Nachemson A, Sommerstein K, Stockselius A, Norling Hermansson L. Health‐related quality of life in Swedish children and adolescents with limb reduction deficiency. Acta Paediatrica. 2010;99(10):1550-5.
  17. Johansen H, Ostlie K, Andersen LO, Rand-Hendriksen S. Adults with congenital limb deficiency in Norway: demographic and clinical features, pain and the use of health care and welfare services. A cross-sectional study. Disabil Rehabil. 2015;37(22):2076-82.
  18.  Johansen H, Dammann B, Oinaes Andersen L, Andresen IL. Children with congenital limb deficiency in Norway: issues related to school life and health-related quality of life. A cross-sectional study. Disabil Rehabil. 2016;38(18):1803-10.
  19. Murray CE, Kelley-Soderholm EL, Murray Jr TL. Strengths, challenges, and relational processes in families of children with congenital upper limb differences. Families, Systems, & Health. 2007;25(3):276.
  20. Weir S, Ephraim P, Mackenzie E. Effects of paediatric limb loss on healthcare utilisation, schooling and parental labour supply. Disability and rehabilitation. 2010;32(24):2046-55.
  21. Krantz O, Bolin K, Persson D. Stigma-handling strategies in everyday life among women aged 20 to 30 with transversal upper limb reduction deficiency. Scandinavian journal of disability research. 2008;10(4):209-26.
  22. de Jong IG, Reinders-Messelink HA, Janssen WG, Poelma MJ, van Wijk I, van der Sluis CK. Mixed feelings of children and adolescents with unilateral congenital below elbow deficiency: An online focus group study. PloS one. 2012;7(6):e37099.
  23. Thorsen K, Grut L, Myrvang VH. Sjelden og vanlig. Livsberetninger, livsløp og aldring med sjeldne diagnoser Tønsberg: Forlaget Aldring og helse. 2011.
  24. Johansen H, Andresen I-L, Thorsen K. Mestring av funksjonstap og smerter hos kvinner med en-arms dysmeli. Ergoterapeuten. 2014;57(5):36-42.
  25. Helsedirektoratet. Aktivitetshåndboka 2016. Available from: https://helsedirektoratet.no/folkehelse/fysisk-aktivitet/anbefalinger-fysisk-aktivitet.
  26. Regjeringen. Lov om grunnskolen og den vidaregåande opplæringa (opplæringslova) 1998. Available from: https://lovdata.no/dokument/NL/lov/1998-07-17-61.
  27. de Jong IG, Reinders-Messelink HA, Tates K, Janssen WG, Poelma MJ, van Wijk I, et al. Activity and participation of children and adolescents with unilateral congenital below elbow deficiency: An online focus group study. Journal of rehabilitation medicine. 2012;44(10):885-92.
  28. Bragaru M, Dekker R, Dijkstra PU, Geertzen JH, van der Sluis CK. Sports participation of individuals with major upper limb deficiency. British journal of sports medicine. 2013:bjsports-2012-091890.
  29. Vasluian E, van Wijk I, Dijkstra PU, Reinders-Messelink HA, van der Sluis CK. Adaptive devices in young people with upper limb reduction deficiencies: Use and satisfaction. Journal of rehabilitation medicine : official journal of the UEMS European Board of Physical and Rehabilitation Medicine. 2015;47(4):346-55.

 

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